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Endo Girls
the ongoing saga of bloody pain
25th-Jun-2014 12:43 pm
luke and katie
Hi. I was diagnosed 4 years ago through laproscopy and they went ahead an burned it off and put me on lupron (after depo just made me bleed 24\7). I dont want to go through that again.. and recently I have started getting my period every 2-3 weeks and since I start hurting and get depressed the week before in addition to the week of I am almost always miserable. I am looking for alternatives. Does anybody else get pain before their period? Has anybody tried the "endo diet" and had some progress? Any suggestions welcome.. Feel alone and hopeless.
25th-Jun-2014 06:28 pm (UTC)
Oh man, Depo was literally a bloody hell for me too. I bled for a month so heavily that I would leave the house, have to use the preschool toilet when I dropped off my daughter after 10 minutes in the car, and then 15 minutes later when I arrived at work, I'd rush off into the bathroom because I'd have filled my 20mL menstrual cup and was leaking all over again. It was awful. NEVER AGAIN.

I can tell when my period is coming because I too get depressed and in a lot of pain a good week before. It sometimes feels like the only time I feel ok is the week my period stops. Ovulation sucks even though I have only 1 ovary: I had a stupid doctor convince me to have an ovary removed to stop the pain ("because endo doesn't cause pain; it must be this ovary!" he said).

I got a prescription of tramadol from my PA. I've never had a doctor or health provider be as kind and compassionate as my doctor's Physicians Assistant, and I love her. The tramadol eases the pain on those awful days and I can almost feel normal again. I also take magnesium daily, and vitamin B12 and D fairly regularly.

I understand how hopeless it feels but you're not alone. xox
30th-Jun-2014 12:43 am (UTC)
For me dietary changes made no difference in pain but certain foods make me feel ill in general so I try to avoid those. A healthy diet is never a bad thing and some women have had it help so I would say it's worth a shot.

I've had lots of pain medicines and such which don't usually even put a dent in the pain...ibuprofen works best for me, but you have to be on it before the problem for it to be most effective. I still have days of awful pain, but the ibuprofen seems to keep the rest under better control. I'm also on continuous birth control to prevent bleeding as much as possible.

Also, Lupron never stopped my bleeding or pain either, even at double the dosage.

Edited at 2014-06-30 12:45 am (UTC)
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