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Endo Girls
the ongoing saga of bloody pain
Endo and c-sections 
17th-May-2013 01:29 pm
My Sexy Shot
I have a question regarding existing endometriosis and having a c-section.

My husband and I ttc for nearly 6 years when we gave up. My endo has always been a huge problem. I had a lap surgery and somehow we conceived last summer and 7 weeks ago I have birth to my darling son. I've had laps before with no luck in the fertility department. Anyway...

I had a very difficult labor. I was induced at 42 weeks and my contractions came out of nowere coming less than a minute apart. I had an epidural which worked on most of my body but didn't help the back labor on my left side (which it may as well have not worked at all!). After 12 hours of the constant contractions my body literally couldn't handle anymore and my doctor did a c-section. It wasn't what we had planned but it turned out to be the right thing. My baby was lodged in my side (where my endo grows the worst naturally) and wasn't going anywhere.

Well, it's been 7 weeks and still healing. I'm starting to get pain in the same areas my endo has been (and I'm getting burning pains too when I move too quickly), and I've read that endo can form internally around the scarring from the surgery. I am curious if any of you have been through this and what your thoughts and experiences on it are. I got off my painkiller regimen during pregnancy (talk about another level of hell-- the pregnancy alleviated my endo symptoms/pain but the withdrawals even tapering down were awful) and I'd prefer to not get back on those meds if possible. I know pregnancy can help endo go into remission for a long time, sometimes even for years-- it shouldn't be a problem at least until I start ovulating again. But I have a pretty severe, aggressive case of endo so I'm nervous the c-sec will make it worse in the long run.

I wouldn't trade my miracle baby for anything, and for the birth experience there was no other option. My doctor, who is an angel, knew I didn't want to have anymore abdominal trauma so deciding to do the c-sec was not a light choice. My health was at serious risk. Now of course I think about if there was another way, but there wasn't and I may have to live with the consequences of that until I either get a hysterectomy or hit menopause.

Basically, have any of you had a c-sec and notice your endo got worse afterwards? I want to be prepared.

I want to add that for those of you who are struggling with infertility that I NEVER thought I could ever have a baby. And after totally giving up and throwing in the towel I got the surprise of my life. I hope I can give hope to those who feel hopeless when it comes to ttc. Sometimes miracles happen <3

Thanks in advance for your advice/help/sharing.
17th-May-2013 10:45 pm (UTC)
Can't offer help, but huge congrats. Have seen you around these forums for years and years... big hugs to you and your miracle baby!
19th-May-2013 10:00 pm (UTC)
Thank you! He was quite the surprise!
18th-May-2013 06:56 am (UTC)
I had endo and an induced labor and baby was sliced out at 42 weeks on the nose. That was July 19th of last year. I had an epidural the night before after my water broke that was reupped when I was making little progress. 42 weeks was also day 4 of induction. Unfortunately after he came out, I started regaining feeling and panicked/got scared. They let my husband back in the OR after he was braceleted and he and I did breathing exercises and I got through it.

Son was lodged in my pelvic bone, our midwife joked he took a wrong turn. I did notice some pulling pains and did use up most of my pain medication. I bled for eight weeks rather heavily for about six.

I am breastfeeding and haven't gotten my period back so I can't say if the endo is worse. Everry woman is different so every body's reaction may be different. It was my first major abdominal surgery so our level of scar tissue is not the same. Additionally it sounds like your endo is more severe.

I really wish you luck and hope that it doesn't get worse. A mom friend of mine had two vaginal deliveries. During the second pregnancy, the endo didn't go dormant. Part of the reason for the pregnancy was to save her kidneys from the endo as hers was severe. A few years ago, she had another surgery to clear up her endo again.
19th-May-2013 10:06 pm (UTC)
Yuck your labor sounds like it was pretty awful too! I'm only 5'2" and my torso is short. The baby was 21" when he was born so I think that's how he got lodged.

C-sections are terrifying, especially when you're set on a vaginal birth. I used up all my epidural top-offs but they numbed me with something else for the surgery. Even exhausted as I was I was really scared and kept telling them I could feel everything (which no one tells you that you can-- as you know, it feels pretty awful despite the lack of the sharp cutting pains).

I am BF too and hoping AF stays away for a long time. I haven't decided if I want more kids yet (if I can even have anymore, getting this one took so long), which is a factor in my medicinal situation.

If down the road you notice things seem worse can you post about it? I'll do the same. I've read that some women think c-sections give them endo (I doubt that but scar tissue for sure), but not much out there about those of us who already have it before babies.

Congrats by the way, everytime an endo gal has a baby it's a win for us all!
23rd-May-2013 03:08 pm (UTC)
I am 5'3" with a short torso. My little man was a hair shy of 20". Figures he has my sense of direction, not his dad's.

I wasn't necessarily set on a vaginal birth but I didn't want to automatically go to c-section. The best way I could describe the pain was "pulling" but I couldn't articulate it clearly as they were pumping me full of morphine which nearly made me go into a full blown panic attack on the table. It wasn't just "slight sensation of pulling", it was freaking creepy and my body reacted by going "NO NO NO NO NO NO".

The midwife reamed out the anesthesiologist once I was out of the OR and apologized profusely to me for what happened. I was okay by that point and was more happy that my little guy was healthy.

I haven't decided on more kids or not. We'd been together 10 years before trying and my gyn was pretty clear that I'd be lucky to get pregnant without intervention. Welp, we managed on the first shot somehow and I spent most of the pregnancy scared that something would be wrong because there was such a slim chance that I'd ever be pregnant.

I will absolutely let you know if things seem worse. I've heard of women saying that any abdominal surgery can make it more severe which makes sense in a way, but I am hoping it is not the case for either of us.
15th-Aug-2013 10:20 am (UTC)
Okay hopefully you will see this. I am currently on my second period postpartum. Baby just turned a year. My first was hell. I could barely move. The second one is a little better. It feels odd, a similar pain to when I had my c-section and was healing. I didn't want to post anything until I had more than one experience. This time the pain was more in my back. I am still breastfeeding and I don't know if it is that or what but my periods used to be 7-9 days and are now closer to 5-6.
16th-Aug-2013 04:28 pm (UTC)
I am sorry it's so painful. I can relate. I got my period back too, but it was only 3 mo PP (talk about a rip off!!). The first one was the single most painful period I've had in my life and it lasted 7 full days, heavy. I had my second one and it was also very painful but not as much bleeding and only lasted about 3 days. I am bf-ing too. I think it's normal, especially for us endo girls. I am back to having pain during the month and feeling like there's something clawing inside my abdomen, even though it's almost impossible there's endo in there again already (I had a lap right before I got pregnant). I had back pain too, it's like my entire torso is on fire and it's hard to move. I hope you're feeling better now, and that you're doing well between periods. I've had to go back to pain medication for my periods, something I wanted to avoid, but I need to be able to function for my son! The fun never ends with endo!

And since I struggled with infertility for 6 years before my son was conceived I am hoping to have another baby in the nearish future-- I'd like to get pregnant again around his first birthday (planning on when you want to get pregnant is laughable for me), and if DH and I succeed after our second child I might have a hysterectomy; whether it's a partial or a full I haven't decided but I don't want to live with this awful disease for the rest of my life!
18th-May-2013 08:39 pm (UTC)
I didn't end up with a c-section, so I haven't anything to offer on that front, but congratulations darling. I am so happy for you and your little miracle :)
19th-May-2013 10:08 pm (UTC)
Thank you, same to you! They told me after my c-sec that I could have pushed for hours and nothing would have progressed, it just would have distressed the baby. I had no more strength as it was. I wanted to avoid induction and c-section, but lucky me got both. At least I have a healthy son if nothing else! I think I could have my ovaries out now and not be regretful, especially since I never thought I'd ever have one!
4th-Jun-2013 12:56 pm (UTC)
I had a C-section, and before that had stage IV endo. I've been struggling with abdominal pain since. I found a heart medication that gives me relief because it stops smooth muscle spasms. That's been the only thing I could find, and that was by accident due to palpitations.

I wish I had some advice, but I don't. :(

Good luck!
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