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Endo Girls
the ongoing saga of bloody pain
Recent Entries 
9th-Jul-2012 01:03 am - Lupron Depot injection site
Rootless

Ten days ago, I had my second 3-month injection of Lupron. I have been getting injections in my, you know, badonkadonk -- first was quarterly injections of Depo Provera, and then I had my first Lupron shot. I've never experienced any issues with swelling or pain or stinging with an injection before. My first Lupron shot was fine.

But this time, I was super tender for about two days afterward -- to the point where I couldn't sleep on that side because it was too painful. But it eased up. Except now, ten days later, I go to lay down, and it hurts again. I check my butt for bruises, and there are none. So I feel around a bit, gently, and I can feel a lump in the same area as my injection site. It spans the width of two fingers, and it hurts. Is that normal? I thought swelling was supposed to stop being an issue after a couple days. =/

Posted via LiveJournal app for iPad.

27th-Jun-2012 12:43 pm - Working and pain
[VS} Curves are sexy
Long story short, I was hired the other day and am worried about working while on my period and associated pain.
I had a lot of trouble with my last job with nausea and pain around my period and it really hindered my ability to work. My last period was awful and experienced a lot of pain (mainly associated with cramping and bowel movement) and seems to get worse every month. I was just (unofficially) diagnosed last month so I'm relatively new to this.

So two questions:
1. How do you handle working with endo? Any tips?
2. Is there anything I can do for a lot of bowel pain and cramping? Advil doesn't work...

Thank you :).
The Shining_JackT
Hey, girls.

I've got a question for those who have had endometriomas/chocolate cysts.

Have any of you taken depo-provera and has it shrunk the cysts?

I have a cyst (found in January 2012) on my right ovary. I had it checked today after being put on Micronor (also in January). It grew a little, though not much, so obviously the Micronor slowed the growth. It's about 2 cm right now. I had one on my left ovary a year ago (I had laparoscopy August 2011) that grew quickly in only 6 months' time and it was 6 cm at the time of surgery.

So my gyn wanted to put me on Lupron, but I wasn't too keen on that idea, so I suggested Depo Provera shot and he was okay with that and willing to try that and got my first shot today.

I am so sick of endo. I would just really like to find something that works. I know that depo can cause bone loss, unfortunately. :-\ The last thing I want though is another surgery and would like to control this. So I'm just wondering if anyone here has had a cyst that shrunk or went away while on the depo shot?

I know everyone's body is different, but I would just like to hear if anyone has had any luck with it, any good stories, especially with it shrinking endo cysts?

Thanks.

Other ways people have shrunk their cysts welcome, too.
13th-May-2012 10:01 pm - Lupron
Rootless

Ladies,

First lap on Feb 21st, first 3-month injection of Lupron on March 26th. Started spotting a standard amount of brown sludgy stuff about three weeks ago, and it hasn't stopped, but it has escalated in the last four days to a full-on nightmare period. I just bled through a tampon in an hour, then bled through an overnight pad with just the spillover from what the tampon didn't catch. Do I need to see my GYN?

Thank you, darlings!

Posted via LiveJournal app for iPad.

The Shining_JackT
Hey, girls.

I've got a question.

I've noticed recently that after I exercise I will spot/bleed. Usually it's bright red. Only a little bit of spotting or only noticeable upon wiping and will last a couple of days or so.

I don't remember this happening before I had my laparoscopy and finding out I had endo (that will be a year ago in August). But now that I am on BC, I am wondering if it's caused by BC... or if it really is due to endo?

I read somewhere it could be due to progressing endo.

But I also read that a drop-off of estrogen can cause vaginal bleeding... and since I am taking a progestin-only BC (and probably have a low level of estrogen because of it?) maybe that is why I have been experiencing spotting after exercise. Just an idea. I have no idea really. lol

So I wanted to know if anyone else here has spotting after exercise or strenuous exercise? I'm just wondering if it is due to endo or something else... maybe like BC.

The last time I asked, my gyno told me not to stop exercising even though I have endo and a small endometrioma.

Thanks!
29th-Apr-2012 06:18 pm(no subject)
On March 20th of this year I had my first laparoscopic surgery, for removal of a "complex cyst". Turns out the cyst was an endometrioma, and, of course I have endo (stage 3). I thought that I had it for the past 7 years, but I had a hard time getting a doctor who would actually listen to me, until recently.

I am so confused since I got diagnosed. I feel like there is no hope. I know that it is something that I can't get rid of, and that is very upsetting. I am not interested in taking Lupron or anything like that. My gyno told me to try to get pregnant (which I do want to have a baby). I am just worried that I will not be able to get pregnant, even though she said I have a good chance now, especially after she cleaned me out down there (Haha). So, my boyfriend and I are trying to get pregnant. We'll see how that goes.

The first period after my surgery was awful. Lots of pain, spotting before period, heavy flow, and spotting after period. Hopefully this month will be easier.

After all of that I am feeling sick, a new set of symptoms have taken the place of endo symptoms. I keep hurting all over. Weird little pains all over my body. The worst pain felt is in my hands and wrists. I feel too tired to do anything. My brain feels like it isn't working at all anymore. I went to the E.R. a couple of weeks ago because I had chest pain, upper back pain, and left arm pain, the doctor checked my heart and everything. He said that my heart was fine, but I have GERD. Anybody else experience this too? The thing is, I know that it isn't endo related pains, it is something new. Hoping that it will be something simple to get rid of, but I don't know. I have a doctor's appointment coming up pretty soon, so maybe he will be able to figure this out. Having no insurance and a lot of health problems makes me want to cry.

I feel alone and upset. I thought that after my surgery I would feel so great. I did at first after the soreness went away. Now, it has been over a month and I feel like I am sick with something else. I just want to know that I am not alone. I feel like such a failure. I can't work, I can barely leave the house, I wish I could be a better girlfriend. I feel like my boyfriend is upset because I am still sick. I feel like I have let him down by not being 100% better since my surgery.
28th-Apr-2012 05:19 pm - lupron for endo
oh me
I got the 1st round of shots (again) about 3 weeks ago.  I got my period Monday and it was just terrible. So very heavy that they called in the prescription Lysteda 650 mg (2 every 8 hrs).  Last night I was spinnin and thought I was going to pass out. Turned out that is one of those serious side effects that you should stop taking and call your doctor.  I just didn't take anymore. I think my period is finally almost over. 
It's been a pretty hellish week. Because the cramps have just been so bad and I've been extra tired. Taking a lot of Tylenol Codeine to cope through the pain & head pad. 

Right now I'm just wondering regarding the hot flashes... my cheeks /face get so hot and eventually just start itching. Is this related to my lupron shot or sound like something else.

Thanks. 
26th-Apr-2012 08:00 pm - Recap: Health Writing Challenge
snow
So this month on my blog, I participated in a health writing challenge. (I know. You read the title, read this, and now are shocked. Unless you're not.) A lot, though not all, of my posts focused on living with endometriosis, particularly as it relates to inadequately managed pain. There are probably more than I want to link here, but a few:
  • I made a "Keep Calm" parody poster.

  • And wrote about the temptation to classify my endo pain as "imagined" versus "real" pain acquired from observable injuries and stresses.

  • Jalapenos y Masturbation, which is actually about learning how to become my own best patient advocate.

  • Miracle Grapefruit Spoons -- This one might be a bit graphic. The prompt was to write a news-style article on a "miracle cure." I immediately thought of all the times I have (not seriously) threatened to gouge out my uterus with a grapefruit spoon.

  • The Things I Forget -- Some post-its with my endo-specific reminders.
Fair warning: Some of the ones that sound a bit... odd... contain my own special brand of endo humor, which isn't necessarily right for every person or every day.
19th-Apr-2012 02:21 am - So tired.
So what?

Started the Lupron a few weeks ago, and am just now getting a resurgence of pain. Most of my cramping is mild, but I have always gotten UTI-like vaginal/urethral pain, and that has been really tough for me to deal with. The problem is that it seems to only happen when I wake up. So for the past few days, if I wake in the night to pee, I am immediately in awful pain, and I have to stay awake until pain relievers kick in.

This morning, I'd had enough. When I woke up to use the bathroom and the pain started, so, having only slept a couple of hours, I took a dose of Ibuprofen and then pulled out the big guns: Percocet. Thirty minutes later, I was falling asleep again -- only to be so pleased with my ability to get back to sleep that I repeatedly woke up just to make sure the Percocet was still working.

So much for a good night's rest. Endo, why you gotta make my whole life throb like a toothache?

Posted via LiveJournal app for iPad.

11th-Apr-2012 07:13 pm - Great ways to manage endometriosis
There are natural ways to manage endometriosis.
This may be painful(emotionally) for some people.

*Eliminate Dairy Products--dairy is very inflammatory to the human body.  endometriosis is a type of inflammatory disease. In the United States, there are human growth hormones injected into cows. this will interfere with your bodies hormones.
*Eliminate Meat products--same reasons as dairy
*try using natural or bioidentical progestrone to balance out the excess estrogen in your system.
This article offers more information on alternative treatments for endometriosis.

http://www.fibroids-and-endometriosis-help.com/alternative-treatments-for-endometriosis.html
28th-Mar-2012 03:47 pm - Alternatives to Mirena...
I was diagnosed in 2009 with Endometriosis following a laporoscopy and had a mirena coil fitted soon after. It completely stopped me from bleeding, in the past year the pain has begun to return, (some months worse than others). 3 months ago gynae suggested I take cerazette in addition to the mirena coil however the pain worsen and my mood lowered so i stopped. 

I have another gynae appointment next week and ideally I would like to have the coil removed.  What are my alternatives? I know there is Lupron and BCs are worth looking at, (I have wondered if cerazette on its own may have less side effects) Can anyone suggest other BCs which may be an option? 


Thank you!! 
The Shining_JackT
I'm really upset and depressed.

I went back to my gyn to have another ultrasound because of the pain after activity/exercise that I've been having on my right side, near my right ovary. About two months ago I had an ultrasound just to check on things since August 2011 I had an endometrioma removed on my left ovary (at the time of the surgery I had a large endometrioma on my left ovary which was removed, as well as some endometriosis they found, but they had said that my right ovary was completely clear). The ultrasound two months ago showed a cyst now on my right ovary, but at the time he told me it was a functional cyst and not to worry about it. So since I have been having pain in that area after exercising, I went back to see if it had grown or what was going on.

So this time, he told me the cyst is the same size--small--but now he said it's an endometrioma. Before, he said it was a functional cyst. I don't understand how he could change it from being a functional cyst to an endometrioma, especially since he said it stayed the same size. This is very upsetting.

I am very worried it's going to grow. The last time I had a small endometrioma on my left ovary, it grew fast and got large in only six months' time. I tried asking him a couple of questions, but there is a language barrier with my gyn. He has a thick accent that I sometimes find hard to understand, though not always. I really like him, but I feel like I didn't get all my questions answered. I am feeling like maybe I need to have an ultrasound by someone else... I want to know EXACTLY what this is. And I still don't understand why it WAS functional and now it's an endometrioma???

If it is an endometrioma, there really isn't much I can do about it. I already had one on my left ovary... now there's one on my right ovary. He said not to worry about it, as if it wasn't a big deal, but I'm scared!!! He said he didn't think it would grow. How can he say that? That is EXACTLY what endometriomas do! He said to come back to see him in 6 months or whenever I feel like I psychologically need to (so as not to worry or whatever). Then I definitely won't be waiting 6 months!!! I feel like that's too long to not know what this thing could be doing. Maybe 3 months.

Now I feel like I should stop exercising. What if it is aggrivating it and makes it grow? But when I asked him about this, he told me not to stop exercising. He said... just to keep taking my birth control and it wouldn't grow. How can he be so positive? Maybe because it's not HIS ovary.

That's the only difference between this time and last time. I am NOW taking Camila (a progestin-only BC). The last time I wasn't taking any kind of birth control and never have, actually. This is the first time for me and I've been taking the BC for a couple of months. The cyst was found before I started taking the birth control, but I started taking the BC the day after it was found.

What would you do if you were in the same situation? There's really not much to be done, right?

I just really, really don't want to have another surgery and so soon. :-( Will BC keep it small? Could it disappear altogether? That is what I'm hoping, but I don't think that happens very often. :-(
9th-Mar-2012 11:30 pm - Endometriosis Awareness Month
snow
Just in case folks are interested, I'm doing an "endo fact a day" thing at my blog. (Though I got a late start and will consequently have only 30 facts for the month.) If you want to check them out, they are tagged in this category and should be the most recent posts there. (For folks for whom either might be a difficult issue, I tend to write about pain a lot and about fertility much less so, though it does come up.)
Rootless
Hi, everyone!  My name is Naomi.  I live in Delaware, USA, and I will be 24 years old on Friday.

I started having pelvic pain in November 2007 and was told by two gynecologists that the cause was recurring UTIs.  My family doctor, after six months of my complaining, referred me to a urologist.  I had a cystoscopy done with hydradistension, and they found nothing, so I then had a colonoscopy, where they also found nothing.  Nine months later, an ultrasound indicated it was most likely endometriosis, so I started progesterone, which failed quietly.  After that, because I didn't have insurance, there was really no way for me to get treatment, so for a couple of years, I just dealt with the pain.

Last spring, I tried Seasonique, to the disastrous end that it spiked my already-high blood pressure into stroke range and I landed in the hospital with horrid migraines and a diagnosis of oh-my-god-how-are-you-still-alive?

Afterward, my gynecologist -- a wonderful, energetic, competent young doctor who has Star Wars memorabilia in his office -- started me on Depo Provera.  I had high hopes for the Depo, so I accepted the absurdly unpredictable bleeding it created, the near-constant spotting, and the lack of pain relief (that I assumed would come after 6-9 months).  It wasn't a disaster, but it wasn't helping.

Then, this December, just before Christmas, I got what I assumed was a real, normal period.  Not so!  I bled steadily all through January, when I started a new job, which created more issues:  I was commuting 4.5 hours a day and then sitting behind a desk for another 7.5, all while wearing a tampon and a pad to try to control the bleeding (which was becoming excessive).  I constantly had to have a tampon in, and it began to seriously irritate my vagina, to the point where my wonderful boyfriend and I agreed we could no longer have intercourse; it was too painful.

I hadn't previously had many issues with sex being too painful.  It wasn't abnormal for me to prefer alternative intimacies when I was on my period, but it wasn't because the act itself caused pain; it was because I was already IN pain, and I didn't feel like banging.  But when the endo and the bleeding started to interfere with things like sex and my job (I had to quit within one month because I was VERY rapidly getting worse) and my relationship and my sanity, I went back to my fantastically adept Dr. Fingers and he agreed with me that it was time for a laparoscopy.

Between scheduling the surgery (~January 20th) and my pre-op appointment (~Feb 2nd) I experienced my worst pain to date.  I left my boyfriend's house after staying the weekend with him, went home, and decided to ya-ya the Sisterhood before bed.  It was a grievous error.

I felt pain (a very tight cramp) begin to form just before climax, and then, as I climaxed, it felt like my uterus had shrunk in on itself and abruptly turned to stone.  I immediately heaved into a fetal position, crying out in pain, and started sobbing.  I sobbed exhaustively for about twenty minutes -- the pain just would not subside.  Even when it stopped feeling contracted and leaden, it still hurt like hell, a white-hot orb of pain in my lower abdomen.

For awhile I just cried.  I was tired of being in pain, and for the first time in a long time, I thought about suicide.  Instead, I called my brother and talked to him until I was calm enough to drive back to my boyfriend's house, where I bled through a pad an hour the rest of the night and cried until I finally fell asleep.

The month between scheduling the appointment and actually having the surgery were incredibly stressful and painful for me.  I was getting worse very quickly, and I was losing my courage even faster.  I looked through the entries in this community to prepare myself, and they were incredibly helpful.  I also did a lot of research on Lupron Depot, which I will be starting in a few weeks.

I admit, grudgingly, that my two great fears about the lap+Lupron were pain and sex.  After the Medusa Uterus incident, I was terrified of enduring more pain post-op, and the alleged spike of pain that I may experience during the first week(s) of Lupron.  I wrestled a lot with whether or not I am a strong enough human being to willingly walk into a situation that might cause me greater pain before it starts to help.  It didn't take me long to decide it was probably worth it, and that I could most likely deal with whatever I was handed.

The sex thing is more complicated.  I am finally in a relationship where sex is nice (I was raped at 17, and when I finally started having sex at 21, it was with someone pretty incompetent and unsatisfying, followed by a partner who used guilt to coerce me into having sex even when I insisted that I was uncomfortable with it [due to bleeding or pain]).  Beyond the general insecurity of being in pain often and therefore (I perceive myself as) not a fun girlfriend, I also sometimes have moments of guilt:  when sex is messy (because in the last seven months I have been blood-free for about thirty days cumulatively) or the pain I feel afterward makes him feel guilty and helpless.

In January when we had to stop having sex, I cried.  I felt inadequate.  Then it came down to No Orgasms At All for me, and I felt even worse.  I am afraid of making him feel deprived of intimacy.  I am afraid of being unable to provide things that normal people look for in relationships.

I am fortunate enough that our relationship is extraordinarily stable and very open, so we talked at length several times about all of this.  He's more than just understanding about difficulties with endo; he's enthusiastic about making decisions that ultimately benefit me.  So he didn't bat an eyelash at no-sex, and he was nothing but sympathetic and caring about no-Naomi-orgasms.  I don't know why I would worry about his reaction to hot flashes, mood swings, and my inability to produce a natural lubricant (or possibly any libido whatsoever) because of the Lupron.  The last time we talked about the Lupron and the possibility that I wouldn't be hormonally interested in sex, he acknowledged and accepted that possibility, with the loving, tender qualifier that I consent to occasionally being in the same room as him when he had an erection.  I consented.  Problem solved.

So, my laparoscopy was a week ago.  Being well-informed by this community, when my adorable gynecologist walked into my pre-op station and said, "Hey, trouble!" with the same enthusiasm as if he had been at the midnight premier of Episode I in 3D (which I'm sure he was), I wasted no time asking him about the CO2 and his plan for avoiding stabbing post-op shoulder pain.  He learned a long time ago not to make the Surprised face when I ask well-informed questions.  He told me he would do his best to eke out every last bubble, and true to his word, I experienced absolutely NO shoulder pain, at all, ever.

Because I had consented to him lasering off any endo he might find, and subsequently referred to said lasering as "lightsabering," I asked him what color his lightsaber was.  I tried to coax him into telling me it was pink (my favorite color) but he said, "That's not canon.  They don't make pink lightsabers.  It's really dark red, like Darth Maul -- except I guess it's not double-ended, so it's more like Count Dooku."  And that was my pre-op consultation.

Sho' 'nuff, he dug up some endo and lightsabered it off.  I woke up in recovery an extremely irritable young lady.  Half-lucid, I pulled off the oxygen tube under my nose, and it was immediately replaced by a man who gently said, "No, no, sweetheart, you need that."  I told him that I did not need the oxygen, and I pulled it off again.  So they tucked my arms inside of my blanket to keep me from removing anything else, and I moaned in protest, kicking feebly.  When they asked me what my pain level was, I told them it was an 8.  They hit me with a dose of Dilaudid, and I went back to sleep.

A bit later, I woke up, still ridiculously uncomfortable, and told them I was down to a 6.  They hit me with another dose of Dilaudid, while I fought with my tiny arsenal of willpower to get them to let me roll onto my side.  They said no.  Still hazy, I insisted that they were obviously not aware of how I was feeling, and could they please TRY to find their humanity and let me readjust myself?  Denied again.  Eventually the Dilaudid kicked in, and I apologized to the staff for being a whiny baby.  They let me see the love of my life shortly thereafter, then, in no time at all, they let me go home with some Percocet.

I felt almost normal afterward.  My abdomen was tender.  My uterus felt a little bit crampy.  Not a big deal.  I was almost immediately able to eat (tuna sandwich -- best tuna sandwich ever) and I took only Ibuprofen before I went to sleep.

Mobility wasn't an issue for me, and only my navel incision gave me any real discomfort.  The only significant pain was the first day or two of lower abdominal cramping, and then a general ache from keeping my posture kind of hunched (favoring my navel).  I was comfortable enough to go on a weekend trip only 3 days after the laparoscopy.  I am still spotting a bit, and a couple of times in the first few days, I had unexpected gushes of blood, but it was totally manageable.  I didn't even end up finishing the Percocet I was given.

So all in all, the laparoscopy went super well.  I am finally officially diagnosed, and I start Lupron in a few weeks.  Huzzah!

5th-Feb-2012 10:42 pm - Period TMI
Orange rose
Hi everyone, I hope you're all doing as well as can be. I've recently noticed a correlation in how strong my pain is and what my period's like, and I was wondering if anyone else had noticed the same - gory details under the cut.


Read more...Collapse )
12th-Jan-2012 09:21 pm - Some Yoga Blogging Updates
snow
Just a recap of some posts I've written (relatively) recently written that may have endo-related ramifications:
  • When I wrote abou the Seven Things I've Done to Improve My Health, I included becoming a more assertive patient, yoga, and finding more effective pain medication.

  • When I wrote about attachment and aversion, I focused on the idea of being able to stay non-reactive through pain (for times when eliminating pain wasn't a viable option, especially).

  • I sequenced the practice I use when I am tired and hurty (not completely out of it, but too hurty to do what I'd otherwise want).

  • I wrote Pain, Drugs, & Anger about how an article positioned possible abuse of a new medication with more importance than how it might affect people with chronic pain.

  • And I wrote On Squatting for how malasana helps me deal with pelvic floor dysfunction and pain.
I'm not sure how much of it is "happy reading," but I'll wish folks the best, regardless. :)
10th-Jan-2012 02:50 pm - I can't take having a period anymore!
Flower Disturbed
I am so sick of having a period and the pain this time, especially, has been almost unbearable. I was THIS close to going to the ER because of the pain. I was so weak I was about to faint while standing and I felt like I was going to vomit for a couple of hours until it finally subsided. I have been trying to control the endo with diet and vitamins, etc., but that's obviously not going to work. That, and I'm afraid another endometrioma is trying to grow back or has -- and I just had a lap to remove one in the middle of August 2011.

I will be seeing a gyn who specializes in endometriosis (I know some other girls with endo that see him), and I will be discussing the options with him. I want to try either Camila (Micronor) mini pill or Depo-Provera. He will also do an ultrasound when I see him to look at my ovaries. I'm hoping they are still clear. :-(

I don't want to do estrogen & progestin birth control as the estrogen part of it worries me with blood clots and migraines and such.

I've had painful periods all of my life and I am just sick of having periods. If I could stop having periods, I'd be beyond happy. They are complete torture.

So, I wanted to ask those who have tried or are on Depo-Provera right now, how was it for you? I know everyone reacts differently to birth control, but I'm just honestly curious. My sister has been on Depo-Provera for over 6 or 7 years and has been fine with it.

Thanks!!!
22nd-Dec-2011 09:21 pm - End to Endo!
Dragon
Juneau Biosciences has been doing genetic research on endometriosis. I received an email today, and it appears that they are making great strides. They will be sending out a genetic test for endometriosis to select physician's offices beginning early next year for clinical trials. YES - A NON-INVASIVE TEST for endometriosis will be in clinical trials in the next few months.

But they need help! They need women who have had gynecologic/abdominal surgeries and have not had evidence of endometriosis! (They already have pretty good recruitment of endo patients, but if you want to join in, you always can!)

If you want to sign up to help in this GROUND BREAKING WORK please click!

https://www.endtoendo.com/enroll/enroll.php


xposted to vaginapagina
The Shining_JackT
I'm kind of worried/anxious right now.

In August I had a laparoscopy done because I had an endometrial cyst on my left ovary. Before this, I was having weird sensations in that area -- where my left ovary is.

The sensation is EXACTLY like being on a roller coaster. It feels like my stomach drops or flip flops, but not my whole stomach -- just the area where my left ovary is. So it was doing this off and on for a few months until they found the cyst on CT scan.

Now I'm worried because I'm having that sensation again, and I JUST had the laparoscopy in August 2011. I couldn't be getting another endometrioma already, could I?

I also noticed it does not happen as much when I sit, but happens more so when I am standing or walking around.

I don't know if it's a coincidence that it started the day after I tried to run again. Before I had the surgery, I was really into running and would run on the treadmill. Well, two days ago I started running, but only mildly to start, only walking and running off and on for 25 minutes. Well, the next day and today I've had that weird sensation. I don't know if the running is a coincidence to this feeling happening or what, but it's definitely my ovary or around that area causing this sensation and it's starting to worry me again. It's also upsetting because I'd like to try to get into shape again and really can't with this sensation happening and not knowing what's causing it.

I'm just wondering if anyone else has had this sensation or any kind of sensation before they found out they had an endometrioma cyst? Any thoughts or ideas what this could be?

If this continues to happen, I am calling my gyn and asking for an ultrasound. The last thing I want is another endometriioma cyst. :-(

Thanks!

X-posted to vaginapagina
12th-Dec-2011 02:05 pm - Returning endo symptoms.....?
I’m looking for some advice really.  I am 27 and I was diagnosed with endometriosis through a laparoscopy in April 2009 (prior to then my doctor confused it with reoccurring, monthly urinary tract infections!) The first 4 months following the surgery were great – completely pain free. At my follow up appointment the doctor suggested that the laparoscopy had identified adhesions in 3 sites, including my bowel which had begin to fuse to my pelvic wall. He suggested I be fitted with a mirena coil rather than the copper one I had in place and begin taking fybogel daily to ensure the chances of my bowel adhering again to a minimum.


 
Things were fine to begin with but by February last year the symptoms were beginning to creep back in (pelvic pain on my left side every 5-6 weeks followed by cramp in my right leg) I was referred back to gynaecology by my GP and prescribed mefanamic acid to try and suppress the symptoms.  The Gynaecologist suggested it was IBS and suggested trying a different laxative.


 
Despite being on maybe the 4 different laxative in a year my symptoms have not improved, only worsened thru time. For the first year of the mirena coil I had little cramp and no bleeding however now I spot pretty much continually, have pelvic pain to my left side on/off and my leg randomly cramps up. Last month the pain was so unbearable I attended out of hours GP service where I was prescribed more mefanamic acid, tramadol and paracetamol to try and curb the pain. My GP has finally acknowledged theres something more than IBS going on and I have now been referred back to the gynaecologist and have received my appointment for the 21st December.  


 
I’m feeling alittle lost about where to go from here, beyond the pain and discomfort im 27 and hope to start a family before my 30th birthday.  I know my situation is by no means as severe as many of you girls who post on here but I am truly lost about what treatment to consider next. Ideally I would like to try something different from the mirena coil, but I am concerned about possible side effects (particularly emotional ones).  I had no issues with the combined pill however I am no longer able to take it due to migraines and an increased stroke rise.


 
So any ideas, suggestions or advice on possible treatments, or questions to ask in December would be appreciated!
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