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Endo Girls
the ongoing saga of bloody pain
Good evening all! 
15th-Aug-2013 03:31 am
  I have pretty severe endometriosis and OMG does it suck pain wise. I am currently on Depo provera at 2.5months a shot but have been bedridden since saturday due to my cramps (My next shot isn't until the 27th of this month).  I also take 800mg IBUprofen 3x daily, and Tramadol 2x daily.. Can any of you ladies or gentlemen suggest anything else for pain management. I see my obgyn tomorrow, and will talk to her about my pain.. but I want to know if anything else works for pain for anyone else out there. I've tried baths and they just make things worse.. Are there any vitamins, teas, herbs, exercise or anything else you gals/guys can recommend? Thank you all! 
15th-Aug-2013 04:04 pm (UTC)
I honestly don't know if it would help at all, but I usually up my calcium and iron intake when I'm feeling miserable, both through food and additional vitamins.

Taking more pain meds doesn't always agree with me, but when I'm on my period my routine is: Midol in the morning (eliminates my PMS symptoms, including mood swings), 1-2 800mg ibuprofen (1 at lunch, 1 with food at bedtime), and that's about it. I'm still pretty miserable, but the vitamins and nutrients go a long way to making it all manageable.

I hope you're able to find something that works for you.
16th-Aug-2013 04:47 am (UTC)
I tried the vitamin route and it didn't work. Unfortunately my endo doesn't just hurt around period time, but ALL the dang time. My period time was the most painful time so the depo stopped the bleeding. when I come close to ending it, thats when I am in the most pain. I talked to my doctor about it today and she gave me my shot early and changed it so I get it every 2 months, so I am thankful for that! Thank you for everything!
15th-Aug-2013 05:01 pm (UTC)
I also have severe endo (Stage IV) and have a Tramadol Rx for pain, but it does not really do much. For the last few months I've been seeing an acupuncturist and doing castor oil packs, I was shocked how much it helped. I have tried teas in the past, maybe talk to a naturopathic doctor or midwife to see what they recommend?
16th-Aug-2013 04:44 am (UTC)
I will most definitely give castor packs a try! Thank you!
15th-Aug-2013 11:50 pm (UTC)
You might try getting a referral to a pain clinic or for pelvic floor therapy. A good pain clinic will address the issue of chronic pain, not just give you an "abortive" medication for it, and will address it on many levels. Pelvic Floor therapy is physical therapy for your pelvic bones and muscles. My pelvic bones and muscles are very lopsided, causing tender spots, weakness, lack of control, etc. For me there hasn't been any one thing that has helped, but looking at the bigger picture has helped me understand what is going on and alleviated the severity of some of the symptoms I was having. It might be worth looking into?
16th-Aug-2013 04:43 am (UTC)
I was signed up for pelvic floor therapy, but I am really super uncomfortable with people touching me down below. It comes from trauma when I was a child, so it really killed me mentally. I have a problem with my pelvis as well when it comes to control issues. I will ask about the pain clinic most definitely, thank you!
16th-Aug-2013 12:55 am (UTC)
Ask about muscle relaxers. A mild dose of a muscle relaxer at bedtime instead of some of that ibuprofen (you're taking an awful lot!) might do the trick, and will also probably help you sleep.

I'm pretty much permanently off of all NSAIDS because between my endo and rheumatoid arthritis I was taking so much for so long that I damaged my stomach. Now I have to be on Prilosec for the forseeable future and I can't eat certain foods anymore without being in immense pain and needing handfuls of antacids.

But the combo of Depo + 10 mg cyclobenzaprine + 10 mg tramadol works for me really well. So, maybe your doc will be willing to swap in the muscle relaxer. A common brand name for it is Flexeril.
16th-Aug-2013 04:40 am (UTC)
I am on Tramadol 50mg 2x daily, and it works pretty well. It's just the ending of my shot that kills me pain wise. I have tried Flexeril and it did absolutely nothing for me, but the ibuprofen seems to do it's job. I went in today and she gave me my depo shot early and readjusted it to every 2 months. so I am thankful for that.
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