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Endo Girls
the ongoing saga of bloody pain
9th-Sep-2012 01:34 am

I am in the last few weeks of my bout with Lupron. I just got done having sexy times with my partner, and we were discussing what my treatment future looks like. I was explaining how relapse is almost certain after a period of time, because once I bleed again, I am basically planting a seed of Endo possibilities.

Then I looked at our sheets. There was a spot of bright red on them.

I burst into tears. I panicked. It was just a piece of red thread. I think Endo has given me PTSD.

Posted via LiveJournal app for iPad.

9th-Sep-2012 08:57 am (UTC)
I just finished a 6-month round of Procren (same as Lupron), and I was terrified as to what would happen after, and a doctor put me on a 3x strength version. I am on that now, and it works better, but still not entirely well enough.

And you should be thanking your lucky stars that you can still have a sexual relationship! I think I might have taken it a bit further... I am pretty much afraid to have sex at all. The memory of the pain from the last time I tried makes everything incredibly non-sexual. My husband doesn't understand at all.

9th-Sep-2012 09:03 am (UTC)
There was a time when I couldn't have sex. The Lupron has alleviated most of my pain. It's the constant fear that it's going to come back that I deal with now. But yeah, certainly I traded up.

Also, my partner has always been very understanding. I feel bad for ladies who don't have the support I've had. =(
9th-Sep-2012 09:41 am (UTC)
I hope the remission lasts for some time.
And at least they are still doing research, so there is hope.

I have complex PTSD, from childhood and adult abuse. And am at last getting decent treatment. If you think you might have PTSD, get it checked and get some therapy - don't leave it as I had to.
10th-Sep-2012 02:48 am (UTC)
Oh, that is funny but not really. *gentle hugs*
Stupid endo!
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