I am writing seeking some support. I was diagnosed with PCOS in October of last year, and after having increasing pain, was also diagnosed with endometriosis and myofascial pain syndrome in March of this year. I was scheduled to have my first lap on August 17, and then three weeks before my surgery date (last Monday) I ended up in the ER with shortness of breath and chest pain. Come to find out, the birth control that the doctors had me on to help control the PCOS and endo had caused three blood clots in my lungs. They told me I was very lucky to survive! After a brief hospital stay, I have been at home resting for the last week or so, and am allowed to gradually return to work over the next several weeks.
However, my surgery has now been postponed for at least six months due to the blood thinners I am now on. So... at least six more months of endo pain for me! I have been trying to work through all of this as best as possible, but I fear that some days it has gotten the best of me. Many of my loved ones have also said that they feel these illnesses have gotten the best of me. I'm hoping for some support from others coping with this similar illness, and some advice on how you've worked through the disease. I am still in my first year of dealing with the diagnosis, though pain started about a year ago.
I'm always trying to be positive, but when my surgery got postponed another six months, I was pretty bummed that I wouldn't have some sort of relief in the near future. I take regular pain meds to help with the endo, and they usually help, but I hate being "knocked out" on pain meds all the time just to function. I have gone on a small dose of antidepressants to also help me get through this tough time. They have helped some, but I still find myself struggling often with knowing that I can beat these problems.
Any advice on how you've approached this disease and are trying to beat it are so greatly appreciated.
- I'm feeling:sad