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Endo Girls
the ongoing saga of bloody pain
Ultrasound the 3rd 
1st-Aug-2012 11:40 pm
golden tiger
Monday, three weeks after my last ultrasound, I had another. Checking on the cyst on my right ovary, which I was convinced was still there. Hurt like it was. My pain's just been worse and worse. Today was my followup at the gyno.

It's gone. Some free fluid, but no cyst.

So frustrating. Doctor wanted to continue the wait and see, take some antibiotics and keep taking the Naprosyn. I fussed and got pushy. The anti-inflammatory isn't working, some days it helps, but I'm having so much breakthroough pain. Ovulation Sunday before last had me nearly crippled. Yesterday, walking through a grocery store had me holding onto the cart and freezer handles. Refuse to wait another month or few weeks.

I was sitting there, in pain. Think she figured out I wasn't going to be happy (or even leave) without getting my laparoscopy. Office was slammed today and the lady who scheduled surgeries didn't have time. Supposed to call me tomorrow. My gyno won't be doing it, she's an APRN. Hope I can get in very very soon. Heading out of country in three weeks and start school end of the month. No time for surgery after that til December!

So scared they won't find anything wrong. That I pushed and pushed for absolutely nothing.

Scheduled for the Friday 14th of September. Stinks because I'll be missing classed for my pre-op paperwork and the surgery itself, but hopefully by the following Monday I can return to classes. Any experiences handling this right in the middle of college?
2nd-Aug-2012 08:18 am (UTC)
I SO feel you right now!

I had a lap. last September, and the pain came back full-force in January. Since then, I have been going through hormone treatments galore.

My last ultrasound (one week ago) was exactly the same as the one I had last year before my surgery... it showed nothing. I have no trust in ultrasounds whatsoever. They are only really used to detect a few specific things, and they do not pick up most endometriosis.

5 days after I had an ultrasound last year, that showed a "healthy uterus and ovaries", I underwent a lap surgery that was positive for endo.

It can drive one mad!
2nd-Aug-2012 11:47 am (UTC)

I can hear your fear and I have been there. Keep standing up for what you know you need. Medicine rules things out, not in, so the lap makes sense to look for endo. Take care of yourself. Maybe you can book something nice like a manicure or something gentle and self-caring?
2nd-Aug-2012 04:46 pm (UTC)
I had my lap during my first semester of grad school. My situation was a bit different, because I had been sick for a few weeks and had to drop my classes.

Definitely try to talk to all of your professors beforehand, so that they know you're taking their classes seriously. It also helps to talk to them because you are having surgical procedure. Some people are able to get back to business as usual within a day or two. It took me a month to be able to ride in a car without being in pain—you never know, so talk to them beforehand.
2nd-Aug-2012 07:42 pm (UTC)
Is this your first lap? Speaking on just a pain level and being able to function, after my first lap, I had lots of pain, but I also had lots of endo removed. I think that surgery was 3 hours long and required an overnight stay in the hospital, which was not organically planned. BUT i had TONS of endo, like my whole abdomen was covered in it, so that's not a typical experience. (I also had my appendix removed too due to the endo.)

My second lap was better, very little pain afterwards. I still had issues walking totally upright for a while but I was able to function, and only took the mild pain pills with some advil.

It'll all depend on what they find and what they do. And everyone is different. Talk to your profs and tell them you're having this surgery. It's the beginning of term, so hopefully they'll be able to work with you. Take your pain pills. Even if you don't feel the pain or it's just mild, take them every 6 hours or as directed. Take the anti-infammatory. You don't want to chase the pain.

I'm so sorry you're in so much pain, and so happy that you were able to get the lap scheduled without too much hassle. Even if they don't find something during this lap, you've been proactive, and can move to maybe looking at other reasons for your pain. Even the most microscopic amount of endo can cause horrific pain. Don't be discouraged! Good luck!
2nd-Aug-2012 08:38 pm (UTC)
Right now I'm second-guessing myself because I'm having a mostly pain free day. I guess if it really does fade out and go away, I have time to cancel >.
2nd-Aug-2012 10:27 pm (UTC)
I think you should have the surgery even if your feeling better if you can. The only way to definitely diagnosis endo is with a lap. If you have you'll know. If you don't you'll know.
3rd-Aug-2012 02:54 am (UTC)
Ultrasounds suck. Here's what mine missed: a golf ball sized cyst on my ovary (and the ovary was so covered in adhesions it was glued), that my intestine was in the wrong place, and that I have stage 4 endo.

Just saying...ultrasounds aren't always right.
3rd-Aug-2012 02:55 pm (UTC)
Was it an abdominal or transvaginal ultrasound that missed so much?
4th-Aug-2012 12:30 am (UTC)
abdominal. They can't do the other one on me
4th-Aug-2012 11:46 am (UTC)
Glad you got the surgery booked. You'll do great.

Just remember that schools have policies and procedures in place for exactly this circumstance. Notify whoever you have to notify, get things organized and then just take time to heal. Don't try to do both for that time, or trust all of us on here, you will just delay the healing and take longer. We all try to do more than we should post-op. It's not smart.

Everyone is different. It took me almost 2 weeks to feel normal again and more than a month AND cutting out gluten for the inflammation to go down so I could fit into my normal clothes again. But that was just minor. Once the main pain is gone and you can walk/move around, you can catch up with school.

Good luck!
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