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Endo Girls
the ongoing saga of bloody pain
Neurontin / Gabapentin for endometriosis pain management? 
6th-May-2010 10:50 pm
rhps sept2009
My pain management doctor wants me to try Neurontin/Gabapentin to try to manage the endometriosis pain. She's in agreement with researcher Ian Fraser that endometriosis nerve clusters attach themselves to an existing organ's nerve clusters and have a wild pain party, and thinks gabapentin could help me.

Have you taken neurontin/gabapentin for pain management of endometriosis?

If so, did you have side effects?

Did you have pain relief?

If you had side effects, what were they and how severe; were they positive side effects (increased libido for example), negative side effects, or both?

Did you have to stop taking gabapentin due to side effects, and did everything go back to 'normal' after you stopped taking gabapentin?

The last entry I see in this community on this was in 2006.

Thanks, ladies!
Comments 
7th-May-2010 07:27 pm (UTC)
Yes, I'm taking gabapentin. Have been for about a year.

Pain relief: minimal, frankly.

Side effects: really helps my bladder frequency (I have IC)--I can almost sleep through the night now

Coming off it: don't do that without a doctor-overseen taper
8th-May-2010 09:51 am (UTC)
I take pregabalin (lyrica), which is similar to the medication in question. It does nothing for my endo pain. Absolutely nothing. It just makes me feel kinda drunk - and confused and in pain.

I do not recommend it.
12th-May-2010 04:42 am (UTC)
I take it for post concussion syndrome but have found it helps with my endo a lot in conjunction with my norethindrone. Pain levels of my endo were higher before but now usually spike to only a 3 on my worst days. Just be careful, take it only when you are about to go to bed or are done for the day. It can make you feel intoxicated or very drowsy.
14th-May-2010 02:15 pm (UTC)
i was taking Neurontin and it did help. I would def notice a difference when I didn't take it. I was taking 300mg 3x a day.

It brought my pain down from a daily 8 to a 4-5.5 most of the time. It made it bearable for me.

The first few weeks of taking it it made me so tired and if i would missed a day of pills i'd be really tired the next few days of taking them. thats really the only side effect i remember..
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