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Endo Girls
the ongoing saga of bloody pain
Skin Endometriosis 
1st-May-2009 08:36 pm
lqp

I think I may have skin endometriosis.  I have this nodule-like bump on the inside of my butt cheeks (sorry if TMI) that is kind of like a large un-poppable pimple, but it has been there for at least 6 months.  Before this one was present I had another one in another location for about 6 months too. Its so weird, and not at all painful.  I didn't really think much of it until my cousin told me about these bumps she gets around her ears during her period.  Her GYN said it was probably endometriosis, as crazy as it sounds.

I can't seem to find any information or picture on the web about skin endometriosis, besides the fact that it exists.  I will be seeing my doctor in a couple weeks and I can't wait to ask him about it. 

Does anyone have or know anything about skin endometriosis?
 

Comments 
2nd-May-2009 02:22 am (UTC)
I have a bump that has started to randomly appear around one of my lap scars-when talking to my doctor he mentioned that it might be endo. He told me to watch and see if it appears around my period. Since I haven't had a normal one since I can't really tell.

That's really as far as I know, sorry. If you find out anything let me know. :)
2nd-May-2009 11:19 pm (UTC)
Interesting! I have found some info about Endo in incision scars. So weird!
2nd-May-2009 03:55 am (UTC)
If it's not painful, discolored, smelly or leaking any puss (or other fluid) then chances are it is nothing serious. I had a weird bump on the outside of my labia this particular cycle and it went away on its own. Sounds similar to what you have. I did see my doctor this past week for other endo issues and mentioned this and he said that it wasn't anything to cause alarm, esp since it didn't have any of the bad signs as I listed in my first sentence.

I'm glad you're having it checked out, just for peace of mind! Gotta love all the stupid things that can happen with this disease, eh?

Edited at 2009-05-02 03:56 am (UTC)
2nd-May-2009 11:20 pm (UTC)
I'm not too concerned about it, just curious. This nodule thing is so weird because it has been there for SO long!

This disease is so stupid...crazy confusing things just keep happening!
2nd-May-2009 04:28 am (UTC)
I know absolutely NOTHING about skin endo. In fact, after I read this post, I went to read up some. I am prone to getting small cyst type things near and on my girl bits (especially inner thigh up top) so I feel your pain. I dont go to the doctor for every single one now b/c unless they get painful, they tell me to leave them be and they usually go away on their own. It's smart to have the doc take a look, just in case.
2nd-May-2009 05:26 am (UTC) - endo
I have never heard of skin endo, and I had excised in two surgeries and read a ton. What you probably have is cystic acne responding to hormonal changes. Have you seen a derm? Also, try using some soap, just like you would for your face
2nd-May-2009 11:21 pm (UTC) - Re: endo
I don't think it is acne. It's just one bump that's been there for AT LEAST 6 months...I do get pleaty of ance else where from hormones. NO FUN!
2nd-May-2009 05:30 am (UTC) - endo
When I was in my teens early 20's, I used to get the ear cysts too, always around my period. Cutting out chocolate and fried foods helped. Eating more fruits and veggies helped. I think it might be related to PCOS, but I'm pretty sure outside a lap scar (where endo can appear), endo is related to internal issues...but who knows! if it looks like a cystic pimple, it probably is...My face used to get very broken out around the chin and jaw in response to hormone changes...I also realized I rested my face in my hands, and held the phone a certain way...so if you look at your physical actions, that might help.
2nd-May-2009 08:37 am (UTC)
I got endometriosis in the scar from a lap. It was a tight blood-filled lump which got bigger, painful and redder, during my periods. Between periods it remained but as the blood got older and partially re-absorbed it would get smaller and change colour a bit. Over time it grew, and I had it excised at the next lap.
2nd-May-2009 11:24 pm (UTC)
that is so crazy! Endo sure likes to spread to interfere with our lives.
2nd-May-2009 08:48 am (UTC)
i have no doubt that its possible. The skin IS the largest organ afterall! Its not common but its possible.

I would see a dermatologist just to make sure its not something that could be worrysome later one.
3rd-May-2009 01:13 am (UTC)
It's probably a skin tag. They can just randomly appear, grow and eventually possibly fall off. Is it skin colored or red? Does it look like it could be a mole?
I would suggest having a dermatologist take a look at it. Call for an appointment as soon as you can because there is usually AT LEAST a year's wait for a good one!
Good Luck!
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